Stay off the internet

When you get cancer, everyone tells you to stay off the internet. They love to say “don’t google!”

Ummmm. Yeah. Right.

That’s not going to happen. First of all, I have my own digital marketing company and a big bulk of what I do is social media for brands and businesses. I am online all day, every day. I have mad research skills. There is no way someone can tell me not to research this thing.

So, here are all of the things I have learned about Invasive Lobular Carcinoma so far from the internet:

{DISCLAIMER}…this is WAY early for me, so it will be interesting to see how much of this is actually true.

  • 10% of breast cancers are Invasive Lobular Carcinoma (ILC), making it the second most common type of breast cancer
  • ILC is very easily missed on mammograms.  (This one I believe…I had a mammo in December and it didn’t show up)
  • For women who have dense breasts, ILC is often missed and mistaken for tissue, since it often presents itself as more of a thickening than a lump (I have been told many times that I have dense breasts)
  • ILC is not a very studied cancer. The Pittsburgh Cancer Research Center recently had a big symposium to study ILC, saying that it needs more studying and attention.
  • There is some debate as to whether or not chemotherapy is an effective way to treat ILC. Regardless, if the cancer spreads to lymph nodes, it is usually treated with chemotherapy.
  • Some people call this cancer “the old lady cancer”, since it usually hits women later in life (hmm, I am 46).
  • Most people seem to find this cancer when they feel a painful lump and then go have it checked out by a doctor.
  • It seems that some doctors treat ILC similarly to the way Ductal Carcinoma (the most common type of breast cancer) is treated.  There is some debate about this.

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